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Cancer Sites and Literature

These resources and links have been provided  by various NOCC volunteers, ovarian cancer patients, physicians, etc. We are not affiliated with these sites and cannot confirm the accuracy of any information contained on these sites. Any information obtained should be confirmed with your own physician. No endorsement of these organizations or their sites is made or implied.

* The National Ovarian Cancer Coalition's (NOCC) national website

* Click here for Dallas/Ft Worth Chapter of NOCC website.

* American Cancer Society - National Comprehensive Cancer Network Ovarian Cancer Treatment Guidelines for Patients

* Bridge of Blessings - A non-profit organization which offers temporary financial assistance to qualified individuals in the North Texas area who are undergoing treatment for breast and ovarian cancers.

* Cancer.com  - online Ovarian Cancer Awareness Center

* Cancer Care- A national non-profit organization whose mission is to provide free professional help to people with all cancers through counseling, education, information, and referral and direct financial assistance. Phone: 212-712-8080 or 800-813-HOPE.

*  Cancer Care Services - a nonprofit social service agency providing financial, emotional, and social assistance to cancer patients and their families.

* CancerQuest.org The How And Why Of Cancer Cells - from Emory University

* FORCE: Facing Our Risk of Cancer Empowered - An organization for women with genetic forms of ovarian cancer. In addition to being an advocacy group for women concerned about hereditary breast and ovarian cancer, this organization has recently been involved in the establishment of the nation's first peer-support helpline for women with a hereditary risk of developing breast and/or ovarian cancer. The toll-free line is staffed by volunteers who have undergone genetic counseling. The number to call is 1-866-824-RISK (7475).

DFW Hereditary Breast and Ovarian Cancer Support Group This is a group formed in association with FORCE (Facing Our Risk of Cancer Empowered). It is designed for patients (and their families) who have been tested positive for hereditary breast and ovarian cancer (such as BRCA+). They will be meeting quarterly, sometimes in Dallas and sometimes in Ft Worth. For information on upcoming meetings you can call Linda Robinson at 214-645-HOPE. You can also download an informational sheet by clicking here.

* Gilda's Club Our Mission is to create welcoming communities of free support for everyone living with cancer - men, women, teens and children - along with their families and friends. Our innovative program is an essential complement to medical care, providing networking and support groups, workshops, education and social activities.

* LIVESTRONG puts out a free Survivorship Notebook to help you organize and guide your cancer experience.  The easy-to-carry, three-ring binder contains information on physical, emotional and practical survivorship topics, stories of cancer survivors talking about experiences, survivorship tools to help you keep track of important information, and sections for you to add your own records, notes, pamphlets and information.  Click the following link to download an order form. Lance Armstrong Foundation Survivorship Notebook Order Form. Just complete and fax or mail it to them to get your notebook. This is an excellent resource for all cancer survivors. 
CLICK HERE
for main LIVESTRONG website.


* Lotsa Helping Hands - a site which provides free web service designed to help a loved one in crisis with meals, rides, and other daily needs. It is done through a web community where family, friends, and other volunteers can pitch in with the tasks necessary for life to run smoothly. The website was designed to provide a coordination of caregiving services and is partnered with the NOCC on a national level.

* National Cancer institute - The NCI is a component of the National Institutes of Health, one of eight agencies that compose the Public Health Service in the Department of Health and Human Services. The NCI coordinates the National Cancer Program which conducts and supports research, training, health information dissemination, and other programs with respect to the cause, diagnosis, prevention, and treatment of cancer, rehabilitation from cancer, and the continuing care of cancer patients and the families of cancer patients. Their website includes links to cancer information and clinical trails.

Ovarian Cancer National Alliance - The primary goal of this organization is to establish a coordinated national effort to place ovarian cancer education, policy, and research issues prominently on the agendas of national policy makers and women's health care leaders.

* Society of Gynecologic Oncologists - The SGO is a national medical specialty society of physicians who are trained in the comprehensive management of women with malignancies of the reproductive tract. Its purpose is to improve the care of women with gynecologic cancer by encouraging research, disseminating knowledge which will raise the standards of practice in the prevention and treatment of gynecologic malignancies, and cooperating with other organizations interested in women's health care, oncology, and related fields.

* Women's Cancer Network - The WCN is an interactive website dedicated to informing women around the world about gynecologic cancer. The goal is to assist women who have developed cancer, as well as their families, to understand more about the disease, learn more about treatment options, and gain access to new or experimental therapies. The WCN was developed by the Gynecologic Cancer Foundation and CancerSource. Phone: 312-578-1439.

 

Literature Recommended By survivors:

  • Ovarian Cancer Resource Guide for Women With Recurrent Disease This new informational booklet is provided by the national office of the NOCC.
  • Gilda's Disease: Sharing Personal Experience and a Medical Perspective on Ovarian Cancer by Steven Piver
  • It's Always Something by Gilda Radner
  • No Time To Die: Living with Ovarian Cancer by Liz Tilberis
  • Women's Bodies, Women's Wisdom by Christiane Northrup, M.D.
  • The Wisdom of Menopause by Christiane Northrup, M.D.
  • Conversations! A magazine put out by the International Ovarian Cancer Connection. Phone: 806-355-2565 or www.ovarian-news.org. The IOCC is an organization for the support of those fighting ovarian cancer and other related illnesses. It functions on the national and international level to increase public and professional awareness and understanding of ovarian cancer and related illnesses, to advocate for increased research and funding for more effective diagnostics and treatment, and to provide tips for coping with the side effects of ovarian cancer and its treatment. This is the only national or international ovarian cancer organization which can provide multiple matches for women seeking to contact other ovarian cancer fighters with similar circumstances, such as geographic region, unusual cell type or treatment, age or stage at diagnosis, side effects, family situation, etc.
  • Cure Magazine - A quarterly magazine published by Cancer Information Group. Phone: 800-210-CURE or www.curetoday.com. This magazine combines the science and humanity of cancer for those who have to deal with it on a daily basis. CURE provides scientific information in easy-to-understand language with equally understandable illustrations.
  • Heal Magazine - This magazine is for the more than nine million cancer survivors in the United States who have made the cancer journey and the millions more who have made it with them.  It is the magazine that addresses becoming whole again after treatment ends - no matter the outcome or future prognosis.  It is the how-to guide for how to "be" after cancer treatment is over.  Think of it as a support group that will arrive in your mailbox.  Phone:  800-210-2873 or www.healtoday.com.
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    Email Melissa@OvarianCancerAwarenessSite.com with any website, literature, store or event recommendations. I will manually approve the addition of any information or stores to this site.

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